A compilation of national plans, policies and government actions for rare diseases in 23 countries

Recommendations for the development of national plans for rare diseases

Rare diseases are a threat to the health of EU citizens, in so far as they are life-threatening or chronically debilitating diseases with a low prevalence and a high level of complexity. Despite their rarity, there are so many different types of rare diseases that millions of people are affected. The focus on rare diseases and the recognition of the fact that rare diseases have common issues in...

European Project for Rare Diseases National Plans Development (EUROPLAN)

EUROPLAN (http://www.europlanproject.eu) is a three year EU funded project (2008-2011) coordinated by the Italian National Centre for Rare Diseases (Istituto Superiore di Sanità, Italy), which involves 30 Countries and EURORDIS. The Council Recommendations on European Action in the field of Rare Diseases (RD) which was adopted by the EU Council in June 2009 calls upon Member States to adopt Nat...

passivity in waiting for godot and endgame: a psychoanalytic reading

this study intends to investigate samuel beckett’s waiting for godot and endgame under the lacanian psychoanalysis. it begins by explaining the most important concepts of lacanian psychoanalysis. the beckettian characters are studied regarding their state of unconscious, and not the state of consciousness as is common in most beckett studies. according to lacan, language plays the sole role in ...

National laboratory policies and plans in sub-Saharan African countries: gaps and opportunities

BACKGROUND The 2008 Maputo Declaration calls for the development of dedicated national laboratory policies and strategic plans supporting the enhancement of laboratory services in response to the long-lasting relegation of medical laboratory systems in sub-Saharan Africa. OBJECTIVES This study describes the extent to which laboratories are addressed in the national health policies and plans c...

National Plan for Rare Diseases